I made the decision today to apply to hospice. My oncolgist says all we can do now is try to give good palliative care, and we're going to go through the course of radiation on the bone cancer, and the radiation on the brain. This way, I can have a good quality of life with what's left, and not have to go back through the torture of chemo that doesn't work.
I got through the initial brain radiation, and it wasn't of course as bad as my antipation of the terror. I did come home with waffle marks all over my face from the evil mask they snap onto your head and adhere to the table. You WILL NOT MOVE! Jane says they were more like honeycombs.
One of the ladies I always see while waiting for radiaion brought several of us homemade bread. Mine is blueberry and carrot. It was still warm, and very fragrant. And MY was it fabulous. I grabbed a hunk to eat on the way home. This is same woman who knitted me a purple hat because I didn't have one. She's a snowbird from Michigan. An angel of a woman.
So, my primary care doc, Dr. Ramaswamy is going to get the hospice stuff started. We will probably wait until both rounds of radiation are finished. But I can't tell you how relieved and happy I am at making the decision. I no longer have to go through treatments that ultimately don't work, but torture me in the meantime. I can concentrate on my job, my family, my friends, my doga and help them undertand that this is the very best decision I can make right now. And I am happy!
I'll keep you up to date on my progress as we take this journey; I am almost excited to see where we'll go.
Love and hugs to all!