Showing posts with label PET Scan. Show all posts
Showing posts with label PET Scan. Show all posts

Wednesday, December 21, 2011

Remission -- No, NOT Me.


Wikipedia says that remission is defined as: “the state of absence of disease activity in patients with a chronic illness, with the possibility of return of disease activity.”

The Queen of Neuroses would have a field day if my doctor said I was in remission. That dread of waiting for the other shoe to fall, oh yes, the Queen would be in her element.

But I do know people in remission that have been that way for several, blessedly normal years. On the other hand some people who have gone into remission have seen a return of their cancer, but in a more pernicious form. And they soon die. One such was Andy Whitfield. Suffering from Non-Hodgkin Lymphoma, he completed his regimen of treatments, and was pronounced in remission. He was to return to work on “Spartacus: Blood and Sand.”

His remission lasted mere months, and when his cancer returned, it was more aggressive and more lethal. An oncologist, not related to his case, said that there are times when you can have a PET scan (the current gold standard for finding pesky cancer cells) and it finds nothing. Yet a single cell can remain, and that cell has the chance to adapt; it’s already survived what was thrown at it from chemo and/or radiation.

And when the time is right, it divides and conquers; stronger, more aggressive than ever, and driven to survive. So, Andy Whitfield died of his cancer, just 39 years old, in simply beautiful physical condition, and apparently good health. But that one cell had gotten away, and it did its job. (And remember, that’s just the theory of an oncologist non-related to Andy Whitfield’s actual case.)

On the one hand, I would love to hear the words that I am in remission, yet on the other, it’s somehow heartening to continue my treatments, knowing that I’m doing something active to defeat these little bastard cells. Because really, I would hate to give the Queen of Neuroses any ammunition whatsoever.

Oh, and Christopher Hitchens, rest in eternal peace.  You touched so many, in ways you can't even imagine.

Tuesday, May 3, 2011

Pain in the Neck

Actually, I have a literal pain in my neck.  It only hurts when I cough, or laugh, sometimes when I swallow, and occasionally when I breathe.  When you have cancer, you try hard not to leap to the conclusion that every pain you have is another tumor, or that the cancer has wandered.  I try to tell myself, 'Self, you just had a PET Scan.  If your cancer had spread anymore, the PET would have caught it!"  I'm so happy I have a logical mind.  Too bad I have to keep such a tight rein on the Queen of Neuroses.


Tomorrow is my pre-infusion lab work and then Thursday I will be seeing my Medical Oncologist, Dr. Fastenberg.  I'm sure he's thrilled we finally got that PET Scan done. :)  After I see him, it's off to get my Herceptin infusion.  I was wheezing like crazy today; had lots of breathing treatments.  It's the weather.  I'm allergic to just about every plant on the planet.  Yet, I love them all.  Oh well.  My worst allergic reaction is to Bermuda grass.  Guess what is the most widely-planted and grown grass in the Phoenix Metropolitan area?  But of course! :D


Oh, there are so many things sprouting in the 'farmland' now.  The spinach is up, as are the collard greens.  We've got one tomato coming.  And it's almost time to rig up the shade so my tomato plants don't fry.  It was a warm one today.  That sun of ours can really suck the life out of things.  Then, of course, the wind blows and it gets so dusty you can't see the Superstition Mountains.  But let me tell you, there is no place like this on earth, and though I may sound like I am not a fan of the desert, I adore it here.  We have skies that take your breath away.  (No, not the smog, or the dust!  The beauty!)


Anyway, the pain made me decide to telecommute today instead of going in to the plant.  In order to keep the pain at bay, I'm making old man sounds in my throat, because it hurts so damned much to do a really good COUGH!  And these sounds are annoying me, so I don't even want to expose my poor team mates to it.  Not to mention, it's tiring me out. 


Oh, and the dahlias and crocosmias are planted.  I can't wait until they bloom... I LOVE FLOWERS!!!! 


Well, love to all, and may you have good health and a long life!

Monday, April 25, 2011

Perfect Weekend

The weather this weekend was awesome!  Warm, but with a cool breeze; sunny, bright... perfect. :)  But those triple digits are on the horizon.  Alas, that's summer in the desert, at least this desert.

I'm charging up the batteries in the digital camera so that I can take some pictures of my 'farmland.' Sadly, I didn't mark which squash is where.  We don't actually care; we'll just eat what grows.  I did see signs of life on the second furrow, which is one squash and several chili pepper plants.

Happily, still no word on that PET Scan.  This is a VERY good sign!  Of course, it could also be that Dr. Fastenberg only works on Tuesday and Thursday, and hasn't seen the report yet.  I'll go with the first thought.  Besides, he probably had it before he went home last Thursday.  I did the darned thing early enough.

Anyway, not much to report on the health front, but on the FUN front, my Xoom came today, and I LOVE IT!  Got my Kindle app loaded, got signed into HBO GO, so infusions should just FLY by, now. :)

Good health and long life to all!

Friday, April 22, 2011

A Trifle of Bananas

All of the squash plants have sprouted.  We are looking forward to being very creative with this year's crop of produce.  Since the tiller I bought has done such a stellar job, we're thinking of going for carrots and parsnips, too.  We still have plenty of room to grow, so to speak.

We just made a banana trifle with praline crumble within the layers.  It's in the 'fridge and won't be touched until tomorrow.  Too bad we can't grow bananas here, for we already have the tarantulas!  In fact, just yesterday, Jane found a tarantula in the back yard.  Peachy.  You KNOW how I feel about hairy-legged spiders.

Someone asked me today if I had the results of the PET Scan yet.  Well, *I* don't have it, but I'm sure Dr. Fastenberg has seen it.  I would think that if there is no problem, we won't even discuss it until May 5th, when I see him before my infusion.  So, if someone from Ironwood were to call before that, I'd surmise it was because something 'problematic' was found, and we'd have to go back to the toxic chemos.  Gods forbid.

Wendy's been doing clinicals in a palliative care ward at her local hospital.  I know it's hard on her, because I think she's equating a lot of what she is seeing with what will be my future.  In fact, she asked me today if her talking about her time there was bothering me.  Actually, it's not.  And the reason is that I understand what's probably in my future, and though I'm not looking forward to it, it's simply another part of this 'adventure,' as my mom would call it.  I can't project myself there; each of us will deal with what's presented to us in our lives in our own way.  When the time comes, I will deal with it.  Just make sure I get lots of pain-killers, please. :)

Oh, and I bought myself a birthday present today, although my birthday isn't until the 6th of May.  But I got myself a Xoom.  I'm so excited about it!  It will be such fun to have during infusions, and waiting on doctors, etc.  I have to wait until Tuesday for it, though.  I am SO impatient. :D

So, this coming week, I'm going in to work on Tuesday and Thursday.  Wednesday I have to go have some bloodwork.  I always look forward to seeing my local Phlebotamist!  Ahh, I shall take my Xoom with me, for although I have an appointment, there might be a bit of a wait, and besides, I tend to arrive for my appointments with obsessive earliness.  That's a trait I inherited from my father; punctuality to the nth degree.

For those of you that celebrate, Happy Easter!  I remember one year Wendy and I, not being one of those that celebrate this holiday, went bowling.  We had all the lanes at our disposal. :)

Love to all!

Wednesday, April 20, 2011

Pac Man to the Rescue!

You know, it’s hard not to become obsessive about your health when every day you have things to monitor, numbers to process, and countless tests to get done.  Really, I do not want to have to dwell on cancer, lung disease and diabetes but in order to keep things under control, you HAVE to monitor the numbers and take drugs and treatments accordingly.

So, today I headed to Ironwood Cancer and Research Center in Mesa for my PET scan.  This was try number three, and let me tell you, every morsel that went into my mouth for a WEEK was eaten with this scan in mind.  After two tries and two misses, I wasn’t going to miss THIS ONE.  As soon as I got out of the shower this morning, I checked my glucose.  My pink Ultra Mini, which of the two of my glucometers tends to read higher, said that I was at 112.  WoooHOOOO!

I felt much more confident on the drive out to Ironwood.  There was NO WAY they were going to tell me my glucose was too high THIS TIME!  Of course, just in case, I took both of MY glucometers with me. J  Nothing like a little insurance, I say.

I had the same tech this time, and he was a peach.  He was thrilled when his meter showed 144.  Yeah, see, the meters over there really run high.  But I didn’t care, as long as it was well under 200.  He got my IV going; apparently you can’t put the radioactive glucose through your port, darnit.  But he did a FINE job with that IV, and then got me a heated blanket, and I just kinda dozed there for a hour while the radiation had fun searching for evil things within my body.

And suddenly, I started visualizing the irradiated glucose as Pac Man and the Ghosts, chasing all over my body’s grid, and were they ever getting annoyed, as they could find NOTHING!  After my hour of sitting quietly with only Pac Man and his pals as my entertainment, it was time to head into the giant donut of despair. (It’s not that horrible, I just like alliteration.)

If the last PET Scanner was quiet, this one was a complete mute.  One thing I will say about the equipment at Ironwood:  It’s top-notch, as are the people.  Still, you have to lie on that unrelenting slab of what looks like black glass, with only a lift under your knees.  This is supposed to be beneficial to your lumbar area, and it certainly helps, but WOW, when it was time to get OFF the table, I could barely move.  The scan itself took about twenty minutes and thanks to my Xanax, I was fine, mostly.  I really, really hate being in tubes, even if they are mostly donuts.  This donut was THICK!  Hence, quite a length of ME was within the donut hole.

Happily, while being scanned, I reconnected with Pac Man and the boys and they continued their fruitless frolic about my body.  Now, let’s hope this visualization stuff does some good.  I had fun with it, actually.  I’m looking forward to the next Herceptin treatment, where I may just exchange my Apache Attack Helicopters for Pac Man. :)

Love to all, be safe, enjoy life!

Saturday, April 16, 2011

Squash is Our Friend

Yesterday evening, we planted the squash.  I think we started out a little late this year, but it was all in the cause of making sure our soil was prepared.  So we'll have to keep a keen eye on our crops this year.  


Jane was out at one of the home stores today, and came back with Dahlia bulbs, so those are going to be planted in last year's veggie beds.  Later today will see us (I'll supervise) getting the irrigation set up and finishing up the sowing of the remaining crops.  We sound like such farmers. :)


Thursday, I had my Herceptin infusion, and my Medical Oncologist found me in the infusion ward. I told him, happily, that my PET was rescheduled.  He said to make sure I bring my own glucometers, and not to worry, I definitely will!  Yes, my PET scan is scheduled for Wednesday.  I'm going to go into work on Tuesday and Thursday of this coming week.  I am SO very happy with my ability to go places on my own.  Autonomy is a gift; don't take it for granted.


On Monday, I'm going to go work on the GM reimbursement with my Chevy dealer.  Bill Bonham is the best sales person with whom I have ever worked.  He follows up WAY after the sale.  If I live long enough to need another new car, that's the man from whom I'm buying it. :)


So, life is settling down to what's now normal for us, and we're enjoying every day.  Soon we'll have to decide what to do with tons of squash, and isn't that a happy dilemma to have?  I know a local food bank that will probably take whatever we have to spare. 


Love to all!





Tuesday, April 12, 2011

Ai Carumba

Well, we had a little scare here.  Jane's currently in the hospital, undergoing some tests.  I'm hoping she can come home today.  She had some pain in her throat, but not a sore throat, and there was concern that it could be heart-related, and thus the tests.


So far, all heart type tests are coming back fine.  Now they are looking at gastric things.  One thing I will say is that they are not leaving any stones unturned at this point.  They were about to do something with barium the last time I spoke with her.  And if something were to appear, they were going to scope her.  I just tried calling, but got an elderly man, quite obviously well-drugged on pain killers, and he hung up on me. :D


Now I am waiting for the scooter lift installation place to call and tell me to come get my Equinox.  And apparently, I am waiting in vain for someone to call to reschedule that PET Scan.  I guess I'll call again, or just tell Dr. F that they dropped the ball, and all hell will break loose. ... am I that mean?  Depends on the day. ;)


I'm really tired, for as you can imagine, I did not sleep very well last night.  Jane and Nancy headed to the ER around 4PM, and no one called until about 7, and even then there wasn't much to tell.  I think it was 10PM when Nancy called and said they were keeping Jane in the hospital.  Blech.  The Big House.  At least she had her Nintendo DS with her. ;)


I hope that Mobility place calls soon... I want to go to work tomorrow!


Live long and prosper, all.

Tuesday, March 29, 2011

Pet Scan Number Two, take Two...

The redo on the PET scan is scheduled for tomorrow morning at 9:00.  My glucose has been stellar since I've been off the steroids, so I do not see any problems.  However, I didn't anticipate anything the last time, so I will be testing before I head out to Ironwood C&RC.  


I'm not having any major anxiety about the scan, since the last one seemed to be no problem.  But, the last PET was done at another facility.  However, Ironwood always seems to have top-notch equipment, so I'd guess the one tomorrow will be even better than the last one.  Yeah, that's what I'm going with on the anticipation front.  And yet, I shall still be packing the Xanax, just as a bit of insurance against a random anxiety attack.


I was warned not to wear an underwire bra for this scan.  HAH!  Those evil slings of torture?  No underwire has gotten near my 'girls' in years, and never shall again.  No, my 'girls' are quite happy with cotton; they need no trussing up in what amounts to barbed wire!  (Well, after being worn for more than an hour or so, it starts to FEEL like barbed wire, anyway.)


This handsome devil to the right is my Orange Wing Amazon Parrot, Vinnie the Vampire.  He's 15 years old, and is the sweetest thing on earth.  In the old days, before my lungs went to hell, I used to do minimal parrot rescue.  Vinnie wasn't exactly a rescue, but he wasn't a tamed bird, either.  We both had to overcome fear of each other, and now, we're great friends.  He was just under a year when he came to me, and enjoyed drawing blood, hence the "Vampire" sobriquet.


Not sure why I decided to talk about Vinnie today, but I love this picture of him, out in my back garden, and thought I'd share.


Take care, all.  Send me some good juju for tomorrow's scan.  HUGS!

Thursday, March 10, 2011

PET Scan Number Two

I know I haven't posted since Monday, and that's gotten my phone ringing a bit, which is a testament to the fact that those who read this blog notice these things.  And I love you for that. :)


Monday, after I quit virtually working for the day, I had some leftover "Dinner in a Loaf" and went to bed at 6:30PM.  I woke up at 11ish, had some water, and then went back to bed and got up at 6AM.  That's a heck of a lot of sleep for me.


However, the fever has left the building, and though I continue to cough up crap out of my lungs, the volume of said crap is subsiding.


I've got an appointment for PET Scan number two at 2PM today.  I also got a voice mail from Ironwood's finance department.  Perhaps they were trying to warn me ahead of time that this procedure would be the max out I've been waiting for on my 'out of pocket.'  And that would be good, because my pockets are getting threadbare.  Thank the gods for that bonus which is now about petered out.  Everything works out, somehow or another. :)


So, I'll be hitting the Xanax just around when I get to Ironwood, because if this is anything like the last PET, I'd rather have it on board when I get there than to take it 1/2 hour before entering the tube o' terror.


I will check my glucose level before I leave the house, too. They can't do the test if my glucose is over 200, and it sure as hell had better not be.  I had scrambled eggs and one piece of toast for breakfast, and that's it so far today.  Plus, I took my Januvia, so I should pass that test.


I was reading an article today about how patients present themselves to doctors and how, many times, turn a deaf ear to their doctors' instructions.  Is it simple laziness in participating in their own care?  Is it that some aspect of their home life makes it almost impossible to follow orders?  Can they not afford the medications?  Do they just not give a flying rat's ass?


In my case, I try very hard to do what I'm told, although for years Dr. Ramaswamy would gently yell at me because I kept refusing to get another colonoscopy.  I told him I woke up during the first one and all the Versed in the world would not change the fact that I remembered the pain.


That's one of the reasons he was so happy when he finally convinced me to see Dr. Collins, the gastro.  And this time, thanks to that propofol, it was a breeze.  So yeah, in my case my lack of compliance was fear of pain.  Oh, that damned fear; it really wreaks havoc on an otherwise intelligent brain.


An actual good reason for my not posting is that I was busy playing Dragon Age II.  :)  It's a nice break from World of Warcraft.


So, I'm going to play a bit before I have to mosey out to Ironwood and begin my torturous tubular adventure.


Hugs and kisses!

Thursday, March 3, 2011

Mass on Adrenal Gland

The CT revealed a 'worrisome' mass on my adrenal gland.  So, we'll have to go have another PET scan to see if it lights up.  Dr. F doesn't believe it's cancer, but we have to find out for sure.  And if it is, then it's back to the really toxic chemo.  He says I'm doing so well, he can't believe I would have a new form of cancer, and the one I do have doesn't hit the adrenals.  I hope he's right. :)

Ironwood was so crowded when we got here!  I had to pay again, and frankly, if this keeps up, I may not be able to continue my savings contributions.  We're not talking a $30 copay.  We're talking HUNDREDS of dollars each time I come in for my treatment.

I have to admit, it was not what I was expecting to hear today, but I can deal with it.  I've got my fabulous support system that loves me and will help me through. 

And as usual, the Benadryl infusion is hitting me, now, and I am woozy as heck.  So, I'll close this now and wish you a fantastic day.

Tuesday, October 5, 2010

Ports 'o Call!

Maybe that appostraphe should have been after the O... oh well.

Tomorrow I'm going to see my favorite surgeon so that he can give me an infusion port to make the delivery of chemo so much easier.  The oncologist set that appointment up this afternoon.  This dude gets things DONE!

We looked at my PET Scan, which was really fascinating.  He showed me the two lymph nodes but doesn't think they are in my lungs.  In any event, the esophageal cancer is inoperable in his opinion.  That sounds scary, but it's not necessarily so.  We still have options, and that's why I'm having the port put in.  We'll be doing two different types of chemo, and it'll take three hours, and we'll do it one day a week.

Oncologist is also looking at radiation, which would have to be done every day.  He hasn't made up his mind on that one, yet.  And me?  I'm just wanting to start it up and get it over.  I'm so tired right now and I know it's just the stress of talking about all this.  Because although you can think you're being pretty stoic about the whole thing, when you have to confront it head on, it does get damned scary.  Hey, but it could be worse; he could have said to go home, and get your affairs in order.  So there you go.

He says if we go the radiation route, it's going to not be very pleasant, as it will inflame my esophagus and I may get to the point at which I would need a feeding tube.  But, really, the chemo will probably make food taste like crap anyway, so, maybe I won't even mind.  I could sleep for a week.

So, port tomorrow, and I should go get my blood tests done; gotta do them before we can do the first chemo.  I've had a port of sorts before... well, it was the tissue expander which was part of the reconstruction of my amputated breast.  That was pretty cool; reconstructive surgeon filled it with saline every week, making it eventually big enough that it could be removed and the final implant... um,.. implanted.  Of course, that didn't take three hours!  I'm going to need a gameboy or something.  Oh, I can just take my Kindle, and go broke buying books out of sheer boredom!

Alright, more tomorrow, as... you might already have this impression... but I'm really tired. :)

Friday, October 1, 2010

The Doubts are Coming!

Most of today was painful.  I can't take any painkillers except for ...cough... Tylenol, and I'm far too attached to my liver to go there.  The pain makes me recall the conversations my brother and I had during his losing war on colon cancer.  Someone had told him that, when it comes to colon cancer, at least, by the time you actually feel pain, it's too late.

So, today, I've started to have doubts about my chances to fight.  WHICH IS DAMNED SILLY!  It's not like I've got the results of the PET scan in hand telling me to kiss my ass goodbye.  Actually, and quite happily, I managed to get an appointment with my oncologist for Tuesday.  Dr. F is a realist and he won't waste my time on empty promises, so if he says we can fight, then fight we will.

When my brother was in the last few weeks of life, I would call him almost every day, and we would discuss life, the universe and everything.  We both admitted that we had never bought into our Catholic upbringing of hell and damnation, and neither of us professed a belief in the 'popular' concept of one 'old white guy' god.

During one conversation, he asked me if I thought there was something beyond death, and I gave it alot of though and told him that I truly believed that I would see him again, somewhere.  I would see my dad, my aunt and every other person that I had ever loved who had passed on before us.  Of course, I didn't understand why I thought this way, but it was a fundamental belief that I could not naysay.

My brother said, "Well, then, if this is true, I promise you now that I will find a way to let you know the truth."

A few days later, he was gone, and that night, I had one of my unforgettable, very lucid and realistic dreams.  I do not have them often, and when I do, I can tell the difference between one of THESE and the normal dream.  But even in 'normal' dreams, I know I dream, and if I don't like where my dream is going, I wake up.

But this dream... I remember as if I had just woken from it.  I remember the colors, the cobblestones, the linens on the tables, the scents and who was there, and EVERY word spoken.  I was walking down a narrow street in an obviously European town.  Passing an intersection, I was drawn to a cafe, with outdoor tables surrounded by wrought iron railing adorned with trailing vine motifs.  As I approached, my oldest sister appeared and said to me, "Oh good, we thought you'd never get here!" 

She led me into the cafe, and there was my father, my aunt, other aunts and uncles, and I said to my sister, "Oh, I must have died in my sleep!"  There was no fear in the statement; just matter of fact.

"No, you're not dead," she said, "Daddy just wanted a family reunion with the living and the dead."  And I woke up.  It occurred to me that my brother who had just died was not in the cafe, and why my living sister was the spokesperson, I still don't understand.  And I wondered if this was the 'message' that my brother had promised to send, or if this was simply something I wanted so badly, my subconscious GAVE me the message I wanted.

Anyway, I haven't told many people about that dream, because I still question it, but later, when my mom was dying, I had another of THOSE particular dreams, but that'll have to wait for another post.

As for this one, I'm feeling better, for the memory of that dream always makes me smile, and perhaps that is the true message of the dream.

Thursday, September 30, 2010

Radioactive Chick!

I'm back from having my PET scan, and I must say it was another adventure in terror.  Ok, no, it wasn't bad at all.  The only terror experienced was all brought to you by the Queen of Neurosis who had apparently escaped from the basement.  She's back in there now, so everthing's fine.

Time for another of the dreaded IV's and this nurse went above the elbow, but she nailed it!  And so far, no marks to show for it.  Next came the radioactive glucose, which was a non-event.  It didn't burn, it didn't hurt, it didn't seem to do anything, although several people have mentioned my healthy ... cough... glow.

Sadly, you have to sit silently for an hour as you wait for said radioactive substance to wander about your body in search of cancer cells.  I hope their search was fruitless, and certainly not fructose.  In any event, I read a book waiting for them to come haul me kicking and screaming into the tube o' torture.

I was deeply disappointed.  The room was bright, and freakishly cheery with its wall of windows and natural light.  The technician tried to put somthing under my head to raise it a bit, because I have such a hard time breathing while laying on my back.  This scan takes 30 minutes... oh lordy.  However, I had used my secret weapon a half hour before being put in the machine:  XANAX!

The technician was kindness itself, trying to ensure I wasn't scared, and making me as comfortable as I could get under the circumstances.  So, back I lay (and if it should be lie, well, poo, but I can't be the perfect grammarian all the time) and the festivities began.

It's a quiet machine, the PET scanner.  I think even quieter than the CT.  And you don't spend the entire 30 minutes with your head in the tube, thank the dieties.  I closed my eyes and began counting, trying not to worry about the immiment arrival of the tube encasing my head.

I was good up until minute 22, when the muscles in my back began to spasm.  But I wasn't about to have to do this again, so I bit the bullet and kept counting because the tube was over my neck and I knew it was getting close to covering my head.

At last, it was over, and Jane, who had accompanied me for moral support, and I decided to stop by Ironwood Cancer and Research center to make an appointment with the oncologist since we were in the area.

Finally, we headed home, but made a stop at Crackers and Co., where I had half a bowl of utterly magnificent poblano corn chower.  It made me very happy.  I think there is going to come a time when I won't be able to eat for quite a while, so I am enjoying every tiny tittilation of my taste buds.

Got home to find the digestive disease doc had called to say that yes, it is definitely esophageal cancer, and he was impressed that I had gotten my PET so quickly.  Hey, MY  PC does not let grass grow under his feet! 

That's enough for today.  I am exhausted.  Hope I can sleep well tonight, and not be bothered by glowing in the dark. ;)

Wednesday, September 29, 2010

Scanning for PETs?

I got a call from East Valley Diagnostic Imaging earlier today asking when I wanted to schedule my PET scan.  Well, never, actually, but since it's silly not to accept reality, we scheduled the scan for tomorrow at Noon.

Noon... so why do I have to be there at 10:30 to check in?  Oh because we'll be putting creepy crap into your bloodstream so we can find all the nooks and crannies into which the cancer could be hiding.

I'm like, DUDE!  (ok, really, I have played WOW for too long.)  I've still got the black fist of death from last Friday's IV, and I get to deal with another one tomorrow?  Be still my heart... no not literally, thank you. 

You see, I only have one arm still available for injections, blood pressure, blood draws and IV's, and it's not looking so hot right now, and the last time I was at EVDI for my CT scan, after three tries they gave up on the IV.  So, I face tomorrow wtih a bit of trepidation, but I really, REALLY want to get this part over.  I HAVE TO KNOW!

I went to work today, but I left there a little after 1PM.  I was feeling pretty drained.  I haven't heard any more about my biopsy findings and it's getting on my last nerve.  Oh, but hey, I have my new, exciting bottle of Xanax and I shall take it with me tomorrow, although they tell me the PET is about on a par with the CT scan, and that was fine.  Of course, if this is true, why did they ask if I was claustrophobic?  Hmmm.....

Oh well, I'm too tired to worry about it.  Let's just get it over while I'm in my "oh-I'm-so-stoic!" phase. :)

Tuesday, September 28, 2010

And I get my fresh bottle of Xanax...

I have just returned home from seeing PC, and though the biopsy results were not back yet, we did have a long discussion of treatment options and what my next steps should be.

There is still the slim possibility that this thing is benign.  I like this possibility the most, but alas, in the real world using the word SLIM in this case is not a positive.

Now it's time to assemble the team of doctors once again, with my dear PC playing chief orchestrator.  I've got to get an appointment with the oncologist, the pulmonologist, possibly the cardiologist, and get a PET scan.  I'm tired already.

We'll need a good surgeon, if the pulmo clears me for surgery.  PC says there's a guy in downtown Phoenix that does esophageal surgery in such a way that it's easier on lung patients.  I can't remember the name of the process, though.

Other options are that we go straight to chemo, which PC says for this type of cancer, assuming it's the esophogeal brand, should not have an impact on a patient with severe lung disease.

Happily, I work for a company that allows me the flexibility to work around all these obstacles.  I'm a registered telecommuter, one of the accommodations the company has already made for me due to my lung disease.  My manager says my top priority now is me.  He's a peach.

It's going to be a long year, or so, I think, but in the end, I hope to still be alive and kicking, not to mention EATING!  Where's my crab???

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